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Introduction

The ACT on Chronic Disease program is based on previous experience and success in training paid home care staff to deliver better, more integrated chronic disease management.

We aim to address chronic disease management because it is common in home care, and when poorly managed, is a source of home care client health instability and caregiver stress. Informal caregivers are not provided with essential chronic disease management skills that would reduce the risk of functional compromise related to chronic disease symptoms.

Objective and Goal

Building on previous pilot work, McMaster University will develop, test, and deploy a train-the-trainer program that will prepare home care staff to facilitate use of informal caregiver tools, resources, and decision aids. This will provide informal caregivers with general skills to address symptoms in chronic disease management, and the tools necessary to better navigate the home health care system. The program goal is to improve informal caregiver knowledge, confidence, and activation, while decreasing anxiety and distress.

For the success of the program, continued collaboration between home care providers, health care experts, educators, and researchers is needed to provide informal caregiver with the essential skills to address unstable chronic conditions. This program with be aligned, synergistic, and supportive of all partners.


Content of the Program

The ACT on Chronic Disease Program will develop six education modules that reflect identified needs of informal caregivers providing care to home care clients with chronic disease. Building onto a history of successful collaborations, our team is partnering with Arc Media, a video design and production company based out of Waterloo. Additionally, we are partnering with the software development experts at Turtle Labs to develop our education website platform.

 

Team

Team Lead

Andrew P. Costa, PhD | McMaster University

Team Members

Lindsay Klea, BA | McMaster University

Connie Schumacher, RN PhD | McMaster University, HNHB LHIN

Darly Dash, MSc | McMaster University

Graham Campbell, MA | McMaster University

Rebecca Correia, BSc | McMaster University

Sarah Penhearow, BSc | McMaster University

 

Partners

Arc Media

Arc Media

Turtle Labs

Turtle Labs

HNHB LHIN

HNHB LHIN


Funding

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